Should Study Patients be Informed about Study Results?
Apr 14, 2009
by Penny Westmacott
In a study retention program that we have designed for a multi year study, patients receive a “score card” with their study results. This is tracked at each visit, then at study conclusion, patients recieve the completed card.
This achieves two results:
- It keeps patients interested in tracking their results at each visit.
- At the study conclusion the score card transitions these patients back to their primary care provider.
Providing patients with their data as part of a study retention program is an ethically correct and powerful retention tool if handled correctly.
Any thoughts?

