Should Study Patients be Informed about Study Results?

Penny Westmacott

Apr 14, 2009
by Penny Westmacott


In a study retention program that we have designed for a multi year study, patients receive a “score card” with their study results. This is tracked at each visit, then at study conclusion, patients recieve the completed card.

This achieves two results:

  1. It keeps patients interested in tracking their results at each visit.
  2. At the study conclusion the score card transitions these patients back to their primary care provider.

Providing patients with their data as part of a study retention program is an ethically correct and powerful retention tool if handled correctly.

Any thoughts?

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